Case study
NIH’s All of Us Research Program
Embedded Files
Defining and Designing a Digital Ecosystem Supporting a Super-Sized Health Research Program
Background
The National Institutes of Health is the sponsor of the All of Us Research Program, a $600 million flagship health program that was launched in America in 2018.
The aim of All of Us is to advance our understanding of health, and illness, across the complex tapestry of Americans living in every corner of the country, from the rolling farmlands to urban centers with a focus on understanding people historically underrepresented in health research. The development of precision medicine tailored to people's specific needs is the end goal.
To meet that goal, the program is actively recruiting over one million American participants to share health information that can be used by approved health researchers on secure All of Us platforms.
Organisation:
National Institutes of Health, All of Us Research Program
Partner comms agency: WONDROS
Dates:
2016 - 2022
The ask:
The All of Us operational model is a consortium of program partners across the country who are awarded funds to support specific aspects of the project.
Media Betty was commissioned to work with WONDROS, various research partners and the NIH team to deliver design research, experience and content strategies, UX designs, digital ecosystem strategies and UX evaluations across more than 15 projects over a six year period, including the program's launch.
Key activities
Media Betty led specialist activities including: ecosystem modeling, UX strategy and vision, team and capabilities building, user testing, UX research, UX designs, cross-team collaboration, proof of concept and beta product designs, information architecture, team leading and stakeholder management.
Cross-team collaboration
Media Betty UX leadership talent was embedded with digital and research teams at WONDROS and the NIH. We worked alongside HPOs, NIH leadership, technology providers, research institutions and community engagement teams to provide research, solutions and products designs to support multiple aspects of the program.
Project portfolio
JoinAllofUs.org National Outreach and Engagement Websites
UX Vision and Strategy, UX Designs (Beta, Phase 1, Phase 2)
ResearchAllofUs.org
UX Vision and Strategy, UX Design (Beta, Phase 1, Phase 2, Phase 3)
All of Us National Launch Website
UX Strategy and Design
HPO Partner Microsites
UX Research, UX Strategy and UX Framework Designs
UX Reviews
Engagement apps, engagement sites, partner landing pages
HPO Learning Center Product
UX Research, UX Strategy, UX Designs, Data Visualisation Design
Research Experience Strategy
Strategy and Roadmap
All of Us Research Program National Outreach and Engagement Website: Phase 2 Release
All of Us Research Program National Outreach and Engagement Website: Beta Designs
All of Us Research Program National Outreach and Engagement Website: Phase 1 Release
Outcomes and impacts
As of February 2025, just over 1.3 million Americans have registered with the program and almost 850,000 Americans have shared health data, as the program nears its 'one million participants' milestone. There are over 15,000 approved research projects using the programs data to explore health conditions.
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